New research to tackle barriers preventing autistic women from cervical screening

Cancer Research Wales is funding a study to identify and remove obstacles that stop autistic women from attending cervical screening appointments.

Dr Aimee Grant from Swansea University is leading the project, which includes a community council of autistic women working together to co-produce solutions. Evidence suggests fewer autistic women attend smear tests or receive the HPV vaccine, contributing to poorer health outcomes.

Autistic women report that smear tests can be distressing and painful, with concerns that healthcare professionals may not recognise their discomfort. One recurring worry is whether they can effectively communicate during the procedure or ask for it to stop if needed.

Women and people with a cervix aged 25–64 are invited for cervical screening every five years. The tests check the health of the cervix and help prevent cervical cancer. While most people find them uncomfortable but not painful, some experience significant pain, particularly those with conditions like endometriosis or vaginal dryness.

Dr Grant, who is also autistic, said pain responses in autistic people might appear muted, leading health professionals to miss signs of distress.